Residents at your agency will naturally form romantic relationships and may want to express and enjoy these relationships through consensual sexual relations. The definition of “whole-person care” recognizes the sexual needs of your agency’s residents.
Agencies may face ethical dilemmas that require them to balance respect for residents’ sexual autonomy with the need to protect residents from harm. Research shows that few facilities have policies around resident sexual activity. But experts have created guidance your agency can use to minimize risks of sexual activity for residents and the organization while respecting autonomy, privacy, and other resident rights.
Assisted living facilities face state regulations but have no unified federal rules and regulations. Nursing homes face both federal and state regulations. Neither industry has any official regulations regarding sexual relations among residents.
In nursing homes, “there is a tendency for facilities to fall back on an approach [to resident sexual relations] that does not require the additional effort needed to discern residents’ preferences in this area and does not challenge the comfort of the staff,” Eran Metzgar, M.D., writes in “Ethics and Intimate Sexual Activity in Long-Term Care.” “This default position, however, runs the risk of compromising residents’ quality of life and further impinging on their freedoms within an institutional setting.”
An uncoordinated approach also means responses to resident sexual activity depend on the personal attitudes of the employees who discover it. Without training or policy, staff members may make decisions based on their own beliefs around sexuality, or their embarrassment with the subject. And since families make most decisions about assisted living, facility staff often decide how to handle resident sexual activity based on family members’ opinions, Ann Christine Frankowski and Leanne J. Clark write in “Sexuality and Intimacy in Assisted Living: Residents’ Perspectives and Experiences.”
Research on the percentage of assisted living and long-term care residents who have dementia is lacking. But indirect estimates suggest that anywhere from 14% to 70% of people in assisted living have some amount of cognitive impairment, Frankowski and Clark write. Dementia can produce effects including increased sexual expression, inappropriate sexual behavior, or sexual aggression. But “...even though dementia can complicate the understanding of sexuality and intimacy within the context of assisted living, it is possible to differentiate between healthy and unhealthy or wanted versus unwanted sexual behavior,” Frankowski and Clark say.
Most individuals with intellectual disabilities don’t receive appropriate or adequate sexuality education, Nora J. Baladerian, Ph.D., noted in a presentation to the National Adult Protective Services Association. Intellectual disabilities originate before age 18 and are characterized by significant limitations in both intellectual functioning and adaptive behavior, according to the American Association on Intellectual and Developmental Disabilities.
Experts have found that capacity to consent to sex can vary over time, Baladerian noted. Someone could be incapable of consenting, but later receive training, education or counseling that increases their understanding and enables consent. Someone could also be capable of consenting, but later lose that capability due to time and additional disability.
Guidelines have emerged from case law on how to determine whether someone has the capacity to consent to sex. While the guidelines vary across states, they most often include:
The Wisconsin Board of Aging and Long-Term Care Ombudsman Program recommends (PDF) that education about resident sexual activity take place with all stakeholders:
The Wisconsin aging board recommends staff begin a consent assessment anytime intimacy is identified in a facility, in the event the intimacy leads to sexual contact. Staff must recognize that sharing information or reporting activity of a consenting adult could be considered a breach of rights if residents don’t want that information shared.
If two residents are determined to be able to consent to sexual contact, the care plan will focus on the rights associated with that relationship. Facilities will need to consider how to provide privacy for residents who wish to engage in consensual intimate or sexual relations. Staff will need coaching on how to protect the privacy and dignity of residents who engage in consensual sexual activity. Options include using “Do Not Disturb” signs or offering a separate room for privacy when residents do not have private bedrooms. Staff may also need to provide educational materials and discuss potential risks of the sexual activity, like falls, infection, or a cardiovascular event.
If one or both residents cannot consent to a sexual relationship, the care plan should focus on balancing the residents’ right to associate with protecting them from abusive or exploitative sexual contact. Staff should offer the residents opportunities to socialize in a public, supervised area, with checks to ensure sexual contact and unwanted affection do not arise. The staff should also offer activities the two residents can participate in together with supervision.
If assessments find one or both of the residents’ sexual behavior inappropriate or unwanted, the aging board recommends interventions before sexual contact takes place.
The aging board notes that many lesbian, gay, bisexual, and transgender residents have experienced discrimination and may fear service providers will have a negative reaction to their LGBT identity. Facility staff need to learn to recognize reluctance to reveal LGBT identity. The facility must honor all resident rights, all relationships, and work to make all residents comfortable regardless of their sexual identity.
Sexuality evolves for everyone throughout their lives. Any facility that does not recognize and address this can’t fully meet residents’ needs or prepare for the risks residents and the organization may face. Thankfully, numerous resources exist to help your agency and its residents navigate the risks and rewards of consensual sexual activity at all stages of life.